IASSID Ad Hoc Committee on International Multi-centre Research Ethics

This committee was established in 2002, at the request of the IASSID President. Its purpose is to identify issues associated with the establishment and implementation of international multi-centre research projects and to propose mechanisms to promote international co-operation with such research. In particular, the committee is examining what mechanisms are in place to provide for the ethics review of international, multi-centre projects and what mechanisms need to be established before these projects can proceed; especially projects involving participants from developing countries.

All inquiries and contributions to the work of the committee are very welcome, particularly from individuals and/or organisations that are either conducting research or contemplating such activities with individuals with intellectual disabilities who reside in developing countries.

You can download the draft report here : Guidelines for Multi-center Research

Contact with the committee can be initiated through:

STATUTORY COMMITTEES of IASSID

Articles & Bylaws
Chairperson
Dr Coen de Jong
Director Bartimeushage
Centre for Mutihandicapped Persons
P.O. Box 87
3940 AB Dorn
The Netherlands
Tel: +33.343.526500
Fax: +33.343.526856
E-mail:coendejong@compuserve.com

Members of Articles & Bylaws Committee
Ms Helena Hiila
FAMR
Viljatie 4 A
FIN-00700 Helsinki
Finland
Tel :+358.9.348.090
Fax :+358.9.3853.398
E-mail :kvl@famr.fi
www.kehitysvammaliito.fi

Dr Fabrizio Fea
Circonvallazione
Ostiense, 146
00154 Rome
Italy
Tel (work): +39.065136031
Tel (home): +39.065.136031
Fax:+39.065.113031
E-mail:f.fea-aise@mclink.it

Dr Monica Bjorkman
Landstingets Hjnrnskadecenter
Box 17903
11895 Stockholm
Sweden
Tel (work):+46.86906063
Tel (home):+46.8350350
Fax (work):+46.86906068
Fax (home):+46.859474021
E-mail:monicab@aligonet.se

Dr Michael Bach
Senior Research - The Roeher Institute
Kinsmen Building
York University
9700 Keele Street
North York, Ontario
Canada M35 1P3
Tel:+416.661.9611
Fax:+416.661.9611
E-mail:Mbach@orion.yorku.ca

Membership Committee
Chairperson
Dr Mathew Janicki
31 Nottingham Way South
Clifton Park
NY 12065 1713
USA
Tel:+1.518.8778057
Fax:1.518.877.3357
E-mail:mpjzj@aol.com

Members of Membership Committee
Dr Monica Bjorkman
Landstingets Hjnrnskadecenter
Box 17903
11895 Stockholm
Sweden
Tel (work):+46.86906063
Tel (home):+46.8350350
Fax (work):+46.86906068
Fax (home):+46.859474021
E-mail:monicab@aligonet.se

Dr Kanji Watanabe
Inst. Of Developmental Research
713-8 Kamiyacho
Kasugal
Aichi
Japan
Tel (work):+81.568.88.0811 Ext. 3508
Tel (home):+81.568.91.8875
Fax:+81.568.91.8875
E-mail:kanji@inst-hsc.prof.aichi.jp

Dr Jennifer Cartwright
Dept. of Paediatrics
JHB Hospital
P.O.Box 39
Parktown JHB 2000
South Africa
Tel (work):+27.11.488.3177
Tel (home):27.11.728.3073
Fax:+27.11.643.1612
E-mail:092jenn@chiron.wits.ac.za

Dr Kuo-yu (Lisa) Wang
National Chung Cheng Normal University
160 San-Hsing
Ming-Hsiung
Chia-yi
Taiwan
Rep. of China
E-mail:sowkyw@ccunix.ccu.edu.tw

Dr Patricia Noonan-Walsh
Dept. of Psychology
University of Dublin
Science Building
Belfield
Dublin 4
Ireland
Tel:+353.1.706.2123
Fax:+353.1.706.2846
E-mail:patricia.walsh@ucd.ie

Dr Phil Foreman
Special Education Centre
University of Newcastle
Callaghan
N.S.W. 2308
Australia
Tel:+61.49.216275
Fax:61.49.216939
E-mail:scpjf@cc.newcastle.edu.au

Dr Ilana Duvdevany
School of Social Work
University of Haifa
Mount Carmel
Haifa, 31905
Israel
Tel:+972.4.8240827
Fax:+972.3.9712429
E-mail:ilana@research.haifa.ac.il

Norminations & Elections Committee
Chairperson
Dr Nick Bouras
Vice-President IASSID
York Clinic
Guys Hospital
London SE13RR
England
Tel:44.20.79554792
Fax:44.20.79554232
E-mail:nick.bouras@kcl.ac.uk

Members of Norminations & Elections Committee
Dr Stephen Kealy (Ex-officio Member)
Moore Abbey
Monasterevan
Co. Kildare, Ireland
Tel:+353.45.525327
Fax:+353.45.525251
Email:101720.3537@compuserve.com

Dr Yuki Ikeda (N)
Inst. Of Disability Research
Univ. of Tsukuba
Tennodai
Tsukuba 305, Japan
Tel:+81.298.53.4586
E-mail:ikeyukie@human,tsukuba.ac.jp

Dr Kurt Soerensen
Strandbyvg 8
DK 8240
Risskov
Denmark
Tel (work):45.77892991
Tel (home):45.86178886
Fax:+45.77892999
E-mail:kurtsoerensen@dadlnet.dk

Dr Carla Vlaskamp
University of Groningen
Grate Rosenstraat 38
9712 T.J. Groningen
The Netherlands
Tel (work):+31.503.636573
Tel (home)+31.505.340043
E-mail:c.vlaskamp@ppsw.rug.nl

Committee on Awards & Recognition
Chairperson
Dr Sharon L. Ramey
Civitan International Research Centre
University of Alabama at Birmingham
1719 6th Avenue Sth., Rm. 137
Birmingham AI 35294-0021
USA
Tel:+1.205.934.8900
Fax:+1.205.9756330
E-mail:sramey@civitan.circ.uab.edu

Ex-officio Member
Dr Stephen Kealy
Moore Abbey
Monasterevan
Co. Kildare, Ireland
Tel:+353.45.525327
Fax:+353.45.525251
Email:101720.3537@compuserve.com

Members of Committee on Awards & Recognition
Dr Glynnis Murphy
Tizard Centre
University of Kent @ Canterbury
Beverly Farm
Canterbury CT2 7LZ
United Kingdom
E-mail:g.h.murphy@tizard.ukc.ac.uk

Dr Jennifer Cartwright
Dept. of Paediatrics
JHB Hospital
P.O.Box 39
Parktown JHB 2000
South Africa
Tel (work):+27.11.488.3177
Tel (home):27.11.728.3073
Fax:+27.11.643.1612
E-mail:092jenn@chiron.wits.ac.za

Dr David Mank
Institute on Disability & Community
Indiana University
2853 East 10th Street
Bloomington
IN 47408
USA
Tel (work):+1.812.855.6508
Tel (home):+1.812.323.8666
Fax:+1.812.855.9630
E-mail:dmank@Indiana.edu

Publications & Research Committee
Chairperson
Dr Bob Schalock
P.O. Box 285
Chewelah
WA 99109
USA
Tel:+1.509.935.8176
Fax:1.509.935.6101
E-mail:rschalock@plix.com

Members of Publications & Research Committee
Dr Tony Holland - Mental Health SIRG
Douglas House
186 Trumpington Road
Cambridge
CB2 2AH
United Kingdom
E-mail:ath1008@cam.ac.uk

Dr Heleen Evenhuis -Health SIRG
Hooge Burch
Postbus 2027
2470 AA Zwanmerdam
The Netherlands
E-mail:evenhuis@nycap.rr.com

John Jacobson
NYS Omrdd 44 Holland Avenue
Albany, NY 1229
USA
Tel:+1.518.474.4904
Fax:+1.518.473.0054
E-mail:jjacobso@nycap.rr.com

Dr Michael Kamp -Employment SIRG
WASE
Steenpad 3 Willemstad
4797 SG Nederland
The Netherlands
E-mail:ckamp@xsS4all.nl

Prof. Hans Reinders - Ethics SIRG
Faculteit der Godgeleerdheid
Vrjie Universiteit
De Boelelaan 105
Amsterdam 1081 HV
The Netherlands
E-mail:j.s.reinders@th.vu.nl

Prof. James Hogg -Aging SIRG
White Top Research Unit
Franklin Building
University of Dundee
Dundee
Scotland DD 14HN
United Kingdom
Tel:44.1382.344654
Fax:44.1382.201771
E-mail:j.h.hogg@dundee.ac.uk

The Council of IASSID agrees that all properly constituted SIRGs should be linked to the Publications & Research Committee through the Chairperson of the SIRG or a nominated member.

Finance Committee
Chairperson
Dr Mathew Janicki
31 Nottingham Way South
Clifton Park
NY 12065 1713
USA
Tel:+1.518.8778057
Fax:1.518.877.3357
E-mail:janikimp@aol.com

Members of Finance Committee
Dr David Mank
Institute on Disability & Community
Indiana University
2853 East 10th Street
Bloomington
IN 47408
USA
Tel (work):+1.812.855.6508
Tel (home):+1.812.323.8666
Fax:+1.812.855.9630
E-mail:dmank@Indiana.edu

Dr Stephen Kealy
Moore Abbey
Monasterevan
Co. Kildare, Ireland
Tel:+353.45.525327
Fax:+353.45.525251
Email:101720.3537@compuserve.com

Ad Hoc Committees

Developing Countries
Dr Jennifer Cartwright
Dept. of Paediatrics
JHB Hospital
P.O.Box 39
Parktown JHB 2000
South Africa
Tel (work):+27.11.488.3177
Tel (home):27.11.728.3073
Fax:+27.11.643.1612
E-mail:092jenn@chiron.wits.ac.za

Dr Cartwright will look at the Membership of this Committee & will publish the names of members prior to the Council Meeting in 2001.

Non-English Speaking Countries

Dr Patricia Noonan-Walsh agreed to empanel a committee with a view to promoting the IASSID in non-speaking Countries, particularly in South East Asia and South & Central America. Dr Noonan-Walsh will publish the names of the Committee prior to the Council Meeting in 2001

Any member of IASSID who wishes to work with either Committee or both should contact respective chairpersons.

SIRGS / CONTACT PERSONS

AGING
Dr Mathew Janicki
31 Nottingham Way South
Clifton Park
NY 12065 1713
USA
Tel:+1.518.8778057
Fax:1.518.877.3357
E-mail:sirgaid@aol.com

QUALITY OF LIFE
Dr Bob Schalock (N)
P.O. Box 285
Chewelah
WA 99109
USA
Tel:+1.509.935.8176
Fax:1.509.935.6101
E-mail:rschalock@plix.com

EMPLOYMENT
Dr Michael Kamp
WASE
Steenpad 3 Willemstad
4797 SG Nederland
The Netherlands
E-mail:ckamp@xsS4all.nl

EMPOWERMENT & CITIZENSHIP
Dr Val Williams
Norah Fry Research Centre
3 Priory Road
Bristol
BS8 1TX
United Kingdom
Tel (Monday) +(0)117.9289814
Fax:+(0)117.9466553
E-mail:val.williams@bristol.ac.uk

SOCIAL INTERGRATION
Associate Prof. Anders Gustavsson
E-mail:anders@red.sn.se

MENTAL HEALTH
Dr Tony Holland
Douglas House
186 Trumpington Road
Cambridge
CB2 2AH
United Kingdom
E-mail:ath1008@cam.ac.uk

John Jacobson
NYS OMRRD, 44 Holland Avenue
Albany, NY 1229
USA
Tel:+1.518.474.4904
Fax:+1.518.473.0054
E-mail:jjacobso@nycap.rr.com

ETHICS
Prof. Hans Reinders
Faculteit der Godgeleerdheid
Vrjie Universiteit
De Boelelaan 105Amsterdam 1081 HV
The Netherlands
E-mail:j.s.reinders@th.vu.nl

INDIVIDUALS WITH PROFOUND MULTIPE DISABILTIES:
Prof. Hans Nakken
E-mail:h.nakken@ppsw.rug.nl

FAMILY RESEARCH
Mr Jan Blacher
School of Education
University of California
Riverside, CA92521
USA
Tel:+1.909.787.3875
Fax:+1.909.787.3942
E-mail:jan.blacher@uca.edu

INFORMAL SIRGS

FORENSIC
Mr Pat Frankish
Rampton Hospital
Retford, Notts.
DN22 0PD
United Kingdom
Tel:+44.1777.247312
Fax:+44.1777.247316
E-mail:patfrankish@compuserve.com

NURSING
Ms Kathy Service
E-mail:Kathy.service@dmr.state.ma.us

PARENTING
Prof. Tim Booth
Dept. of Sociological Studies
University of Sheffield
Sheffield S10 2TU
United Kingdom
Tel:+01.14.2226423
Fax:+01.14.2768125
E-mail:t.booth@sheffield.ac.uk

Establishment of SIRGS:
The Assembly of IASSID in Seattle agreed rule changes for the formation of SIRGS. Under the Rule change a SIRG should be officially recognised within IASSID must have ten individual IASSID members. All SIRGs should inform the Secretary of the IASSID of the names of its members.