ANNOUNCEMENT RE FORMATION OF SIRG ON DOWN SYNDROME
Many members of IASSID have interests in Down syndrome. Recently IASSID
signed an agreement with Down Syndrome International regarding joint cooperation
and support.
This seems an opportune moment to consider the possibility of forming a Special
Interest group in this field along with the scientific and applied activities
that might be appropriate.
A meeting to consider the above will take place in Maastricht at the time of
the E-Iaasid conference.
Location University building UNS 40: the Tutorial Room 0th floor, 0.537
Time Friday, 4th August from 12.30-14.00 hr
If you are interested please come along.
Expressions of interest, whether you are coming to Maastricht or not would be
welcome (see-mail contact below)
Roy Brown PhD
E-mail: [email protected]
DOWN SYNDROME LIFESPAN PROJECTS QUESTIONNAIRE
There is a growing interest in the aging of people with Down
syndrome, as reflected in the activities of organizations such as Down Syndrome
International and the International Association for the Study of Intellectual
Disabilities. Given this, it appears to be an appropriate time to initiate
a broad discussion of the merits and feasibility of establishing an informal
international consortium on studies of adults with Down syndrome. A first
step would be to assess the nature and extent of current research activity.
This questionnaire asks some pertinent questions on the state of current research
activity involving persons with Down syndrome. We plan to compile this information,
share it among the respondents, and then use it to help frame a discussion on
forming such a consortium at the forthcoming 9th World Down Syndrome Congress
to be held in Vancouver, August 23-27, 2006.
We'd appreciate your taking a few moments and answering these questions. The
results will be posted on the website of the IASSID (www.iassid.org). We will
also send along an email with the results.
Down Syndrome Studies Working Group
A. DEMOGRAPHICS
