Links to other Organizations
AAMR
For information of the activities of the American Association on Mental Retardation
ASSID
ASSID is the official IASSID member representing Australia and New Zealand.
Australian Center on Quality of Life
ACQOL has the aim of facilitating research into quality of life. This site contains
several types of resources including a directory of instruments with over 600
entries, a bibliography with over 6,000 entries, data sites and notices of QOL
conferences. It also contains links to other related sites, theses, links to
chat groups, etc. This site is maintained by Deakin University and all information
can be scanned or downloaded free of charge.
Inclusion
International
For information on the network of families, self-advocates and others,
concerned with the lives of the 60 million persons with intellectual disabilities
around the world that is made up of some 200 local and national member
associations in 115 countries.
Down Syndrome International (DSI)
Down Syndrome International is a recently-formed charity, established to continue the work of the former International Down Syndrome Federation.
Down Syndrome International is a federation of organisations and individuals committed to ensuring the quality of life and human rights for all people with Down syndrome.
DSI organises the World Congress on Down Syndrome
International Down Syndrome and Alzheimer
Disease Consortium
This research project is designed to determine whether the administration
of vitamin E, which has been shown to delay the progression of Alzheimer
disease, will slow the rate of cognitive/functional decline in adults
with Down syndrome 50 years of age or older. The project includes 20 cooperating
sites worldwide. The webpage tracks the progress of the study and its
sites.
University of Illinois
at Chicago RRTC on Aging and Developmental Disabilities
To obtain information about aging and intellectual disabilities - Operates
a clearinghouse of published materials.
Tizard Center
- University of Kent at Canterbury
The primary aims of the centre through research, teaching and consultancy are:
1. to find out more about how to support and work with people effectively; 2.
to help carers, managers and professionals develop the values, knowledge and
skills that enable better services to help policy-makers, planners, managers
and practitioners organise and provide better services.
The Tizard Centre is one of the leading academic groups in the UK working in
learning disability, mental health and services for older people. It has excellent
links with social service departments, health authorities and other relevant
organisations.
The Centre provides short courses and degree and diploma programmes at the University
of Kent at Canterbury and elsewhere and also has an extensive programme of consultancy
and research both nationally and internationally.
The Learning Disabilities
Research Group at the University of Cambridge
The University of Cambridge's Learning Disabilities Research Group was established
with a grant from The Health Foundation, is part of the Section of Developmental
Psychiatry in the Academic Department of Psychiatry. In this context "learning
disabilities" is the term used by the Department of Health in England to
refer to a group of people who have in common early developmental delay and
intellectual and functional impairments. It has replaced terms that are now
unacceptable, such as 'mental handicap' and 'mental retardation' and means the
same as the term "intellectual disabilities" which is increasingly
used internationally. The research group brings together diverse disciplines
which molecular biology, psychiatry, psychology, and sociology, and also affiliations
with other Departments and Universities in the disciplines of genetics, law,
geography and philosophy.
The
University of Birmingham - Neuropsychiatry and Intellectual Disability
The research in the field of intellectual disability within the division of
neuroscience covers a broad area of interests encompassing biological research
at one end and social science research at the other. Effective collaboration
exists with other research groups within the division and other departments
within the University as well as other centres in the UK and abroad. The research
portfolio is gradually expanding in this area, and is integrated well with undergraduate
and postgraduate teaching in the Medical School. We run one MSc course in ‘Learning
Disability’ on site and one distance-learning course. There are overlaps
of modules between these courses and MSc in Epilepsy and Neuropsychiatry. We
are currently exploring the option of obtaining PhD as an extension of the current
MSc course.
The Jerome Lejeune Foundation was created to study and
assist people with : Down syndrome, genetic disorders such as Fragile X or X
related syndromes, Williams-Beuren, Prader-Willi and other rare syndromes. The
Jerome Lejeune Foundation devotes itself to serving mankind and life, to helping
persons with problems related to intellectual deficiency, and to the overall
care for persons suffering from health disorders and disease of a genetic nature.
Research
The Foundation is the largest financial provider of research into Down syndrome.
In 2003 it financed more than 50 research projects worldwide, totaling 1.4 million
euros.
Treatment
Considered the leading research and treatment clinic in France, the medical
team at the Institute has a consultation of more than 3000 patients and families
for treatment, prevention of added handicaps, diagnosis of rare diseases, and
dissemination of information.
Defence of human life
The Foundation's mission is to defend all human lives.
www.planete21.net : first educational site for the mentally handicapped people
Fondation Jérôme Lejeune - 31 rue Galande 75005 Paris
Tél : 01 46 33 31 82 - www.fondationlejeune.org
