Documents - Fact Sheets - Books - Practice Guidlines

Documents

The IASSID releases, from time to time, reports and documents of interest to members and other interested persons. The documents they can be purchased or gratis copies can be downloaded. For purchase information of the books, see under title or please contact the IASSID at iassidoffice@aol.com.

1. THE EDINBURGH PRINCIPLES
This document was developed by the Edinburgh Working Group on Dementia Care Practices at a special meeting held in Edinburgh, Scotland (February 5-7, 2001). The meeting was organized by the University of Stirling (Scotland), the University at Albany (USA), and the University of Illinois at Chicago (USA). The document contains information about universally applicable working practices for the community supports of adults with intellectual disabilities affected by Alzheimer disease and related dementias. It is available for distribution with attribution to the IASSID. IASSID Council approved its distribution on September 27, 2001.
THE EDINBURGH PRINCIPLES

Fact Sheets
Aging and Intellectual Disabilities

This fact sheet describes some relevant issues in aging.

Books

Cancer and People with Learning Disabilities
Hogg J et al (2001) Cancer and People with Learning Disabilities. The evidence from published studies and experiences from cancer services, BILD Publications, Kidderminster. Price: £10.00 + £1 p&p. ISBN 1 902519 73 6. Available from Plymbridge Distributors, Estover Road, Plymouth, PL6 7PZ, www.plymbridge.com.

BILD Code of Practice for Trainers in the use of Physical Interventions
BILD (2001) BILD Code of Practice for Trainers in the use of Physical Interventions, BILD Publications, Kidderminster. Price: £8.00 + 80p p&p. ISBN 1 902519 78 7. Available from Plymbridge Distributors, Estover Road, Plymouth, PL6 7PZ, www.plymbridge.com.

Health of Women with Intellectual Disabilities
Blackwell Science, the affiliated publisher of the IASSID, has posted the first announcement for "Health of Women with Intellectual Disabilities," the premier book in the forthcoming series of books that IASSID is publishing on a variety of issue related to intellectual disabilities. You can access the information on the book at http://www.blackwell-science.com/~cgilib/bookpage.bin?File=10014926 IASSID members will receive a discount on purchases.

We are very pleased with this project and thankful to IASSID members, Drs. Patricia Noonan Walsh and Tamar Heller, for their work in compiling this edited text. The book will be launched at a special event to be held at the IASSID-Europe Congress in Dublin, Ireland (June 12-15, 2002).

Two other books in this immediate series are also forthcoming, one is on the physical health of adults with intellectual disabilities (senior editor is Dr. Vee Prasher) and another is on mental health issues and aging adults with intellectual disabilities (senior editor is Dr. Philip Davidson).

'Ageing in Place' in Disability Services - Sourcebook
The Centre for Developmental Disability Studies (CDDS) has received a grant from the Bernard Judd Foundation (The Hammond Care Group) to develop a Sourcebook about good practice in supporting people to 'age in place' or training providers in philosophy and issues of ageing for people with life-long intellectual and/or physical disabilities. For more information please consult the Sourcebook-Flyer which you can download in the pdf format.

Practice Guidelines

Practice Guidelines for the Assessment and Diagnosis of Mental Health Problems in Adults with Intellectual Disabilities
Deb, S., Matthews, T., Holt, G., & Bouras, N.
2001, pp.118
Source: Pavilion, The Ironsides, Cheapside, Brighton, England BN1 4GD
email: info@pavpub.com
URL: www.pavpub.com

Guidelines for Managing the Patient with a Developmental Disability in the Emergency Room
Bradley. E., Burke, L., Drummond, C., Korossy, M., Lunsky, Y., & Morris, S.
2002, pp 00
Source: on-line -- can be downloaded
email: e.bradley@utoronto.ca
URL: http://www.psychiatry.med.uwo.ca/ddp/bulletins/02marbul.htm

Practice Guidelines for the Clinical Assessment and Care Management of Alzheimer and other Dementias among Adults with Mental Retardation
Janicki, M.P., Heller, T., Seltzer, G. & Hogg, J.
1996, pp. 00
Source: on-line - can be downloaded in PDF
email:
URL: http://www.aamr.org/Reading_Room/Practical/practical_guidelines.pdf
Also published as Janicki, M.P., Heller, T., Seltzer, G. & Hogg, J. Practice guidelines for the clinical assessment and care management of Alzheimer's disease and other dementias among adults with intellectual disability. Journal of Intellectual Disability Research, 1996, 40, 374-382.

Standards of Care for People with Disabling Neurological Conditions Where Cognitive Decline is a Major Feature
Hardiman, O., & Craven, A.
2002, pp.40
Source: The Neurological Alliance of Ireland, Coleraine House, Coleraine Street, Dublin 7, Ireland
email: info@migraine.ie
URL: http://www.brainresearch.ie/ina.htm