Special Interest Research Group - Individuals with Profound Multiple Disabilities After the IASSID World Congress in Finland in 1996, the SIRG PMD was
created with Han Nakken being nominated chairman of this unofficial SIRG.
In 2000, we obtained an official status and already by the end of the
year 2000 we had membership list of more than 40 members.
Persons with Profound Multiple Disabilities
Individuals with profound multiple disabilities form a heterogeneous group.
The 'core group' consists of individuals with such profound mental disabilities
that no existing standardized tests are applicable for a valid estimation
of there level of intellectual capacity and who often possess profound
neuromotor dysfunctions like spastic tetraplegia as well. Apart from profound
intellectual and physical disabilities, it is presumed that they frequently
have sensory impairments. Individuals with PMD form a physically very
vulnerable group of persons with a heavy or total dependence on personal
assistance for every day tasks, 24 hours a day.
The described 'core group' has some overlap with two other 'groups'. The
first 'group' consists of persons who are at the extreme lower end of
the continuum of profound mental disabilities and who also possess physical
impairments due to dysfunction of certain organs or physical inactivity.
The second group consists of persons with motor disabilities as a result
of spasticity and skeletal deformities but 'only' severe mental disabilities.
Plans for the near future
A Roundtable - conference for members of this SIRG will be held in Amsterdam
on the 20th and 21st of March, 2003.
PMD SIRG Board members
Chair:
Prof. Han Nakken Ph. D.
Professor of Special Education
University of Groningen
Groningen, The Netherlands
Deputy Chair:
Dr. Carla Vlaskamp Ph. D.
Professor of Special Education
University of Groningen
Groningen, The Netherlands
Secretary:
Dr. Bea Maes (secretary)
Prof. Of special education
Catholic University of Leuven
Leuven, Belgium
Members:
Steven Carnaby
Clinical Psychologist in Training and
Honorary Lecturer in Learning Disability
University of Kent
London, England
Barbara Fornefeld Ph. D.
Professor of Specail Education
Köln, Germany
Mats Granlund Ph. D.
Professor of Psychology
Stockholm, Sweden
Paul Pagliano Ph. D.
Senior Lecturer Special Education
School of Education
Townsville, Australia
Sylvie Rocque
Researcher in the field of social practice
Université de Montréal
Faculté des Sciences de l'Education
Montreal, Canada
Knut Slåtta
Special Psychologist
Torshov Resource Center for Special Education
Oslo, Norway
You may download the Newsletter here for more information concerning
this SIRG. You will find a list of the members and some of the more important
propsed upcoming events.
Individuals with Profound Multiple Disablilites
You are invited to join this SIRG by contacting Carla Vlaskamp who
is on IASSID council at c.vlaskamp@ppsw.rug.nl
International Association for the Scientific
Study of Intellectual Disabilities
Phone: +33 1 43851206 Fax:+33
1 49361154 E-Mail