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ALZHEIMER'S DISEASE AND DEMENTIA IN DOWN SYNDROME AND INTELLECTUAL DISABILITIES
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Chairperson
Special Interest Research Group on Health IssuesD
D r. Mike P. Kerr (Wales)
[email protected]

Vice chairperson
Dr Helen Beange (Australia)
[email protected]

Steering Committee
Mike Kerr (UK) Chairperson [email protected]
Heleen Evenhuis (NL), Past Chairperson [email protected]
Helen Beange (AUS), Vice Chairperson [email protected]
Bob Davis (AUS), Secretary [email protected]
Vee Prasher (UK), Treasurer [email protected]
Henny Lantman (NL) [email protected]
Markus Kaski (FI) [email protected]
Monica Björkman (SE) [email protected]
Olive Webb (NZ) [email protected]
Robyn Wallace (AUS) [email protected]

The Special Interest Research Group on Health Issues was founded in 1996. Its aims are to promote physical health of people with an intellectual disability by formulating priorities for health care, research and training and by sharing ideas and results.

The group consists of general practitioners (family doctors), medical specialists, physiotherapists, speech and hearing therapists, optometrists, dieticians, dentists, and nurses (as well as others interested in health issues). The SIRG organizes annual roundtables in varying countries around specific themes, consisting of update lectures and free papers. The group has held roundtables in Leyden, the Netherlands (1998); in Manchester, England (1999); and in Gothenburg, Sweden (2001). No roundtable was held in 2000 due to the IASSID World Congress in Seattle..

One of its first activities was the development of an international consensus statement on the early identification of hearing and visual impairment in children and adults with an intellectual disability. Other themes have been: health targets, treatment and intervention of sensory impairment, consensus statement on epilepsy, pain, end-of-life decisions/palliative care, and comorbidity in cerebral palsy. At the IASSID congress in Seattle 2000, the SIRG organized and provided a pre-congress update course on visual impairment and coordinated congress symposia on physical health issues.

Copies of the Health Issues SIRG publications are available from the Chairperson. You can download the : Health Guidelines for an Adult with an Intellectual Disability here.

First Announcement
Combined International Roundtable of the Health Issues and Mental Health SIRGs of IASSID, 2005.
Melbourne, Victoria, Australia
September 28-30, 2005

IASSID INTERNATIONAL CONSENSUS STATEMENT ( Word Document, 49 Ko)
VISUAL IMPAIRMENT ( Word Document, 67 Ko)
HEARING IMPAIRMENT ( Word Document, 58 Ko)

 

 



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     International Association for the Scientific Study of Intellectual Disabilities
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