ASSID
ASSID is the official IASSID member representing Australia and New Zealand.

Australian Center on Quality of Life
ACQOL has the aim of facilitating research into quality of life. This site contains several types of resources including a directory of instruments with over 600 entries, a bibliography with over 6,000 entries, data sites and notices of QOL conferences. It also contains links to other related sites, theses, links to chat groups, etc. This site is maintained by Deakin University and all information can be scanned or downloaded free of charge.

Inclusion International
For information on the network of families, self-advocates and others, concerned with the lives of the 60 million persons with intellectual disabilities around the world that is made up of some 200 local and national member associations in 115 countries.

Down Syndrome International (DSI)
Down Syndrome International is a recently-formed charity, established to continue the work of the former International Down Syndrome Federation.
Down Syndrome International is a federation of organisations and individuals committed to ensuring the quality of life and human rights for all people with Down syndrome.
DSI organises the World Congress on Down Syndrome

International Down Syndrome and Alzheimer Disease Consortium
This research project is designed to determine whether the administration of vitamin E, which has been shown to delay the progression of Alzheimer disease, will slow the rate of cognitive/functional decline in adults with Down syndrome 50 years of age or older. The project includes 20 cooperating sites worldwide. The webpage tracks the progress of the study and its sites.

University of Illinois at Chicago RRTC on Aging and Developmental Disabilities
To obtain information about aging and intellectual disabilities - Operates a clearinghouse of published materials.

Tizard Center - University of Kent at Canterbury
The primary aims of the centre through research, teaching and consultancy are: 1. to find out more about how to support and work with people effectively; 2. to help carers, managers and professionals develop the values, knowledge and skills that enable better services to help policy-makers, planners, managers and practitioners organise and provide better services.
The Tizard Centre is one of the leading academic groups in the UK working in learning disability, mental health and services for older people. It has excellent links with social service departments, health authorities and other relevant organisations.
The Centre provides short courses and degree and diploma programmes at the University of Kent at Canterbury and elsewhere and also has an extensive programme of consultancy and research both nationally and internationally.

The Learning Disabilities Research Group at the University of Cambridge
The University of Cambridge's Learning Disabilities Research Group was established with a grant from The Health Foundation, is part of the Section of Developmental Psychiatry in the Academic Department of Psychiatry. In this context "learning disabilities" is the term used by the Department of Health in England to refer to a group of people who have in common early developmental delay and intellectual and functional impairments. It has replaced terms that are now unacceptable, such as 'mental handicap' and 'mental retardation' and means the same as the term "intellectual disabilities" which is increasingly used internationally. The research group brings together diverse disciplines which molecular biology, psychiatry, psychology, and sociology, and also affiliations with other Departments and Universities in the disciplines of genetics, law, geography and philosophy.

The University of Birmingham - Neuropsychiatry and Intellectual Disability
The research in the field of intellectual disability within the division of neuroscience covers a broad area of interests encompassing biological research at one end and social science research at the other. Effective collaboration exists with other research groups within the division and other departments within the University as well as other centres in the UK and abroad. The research portfolio is gradually expanding in this area, and is integrated well with undergraduate and postgraduate teaching in the Medical School. We run one MSc course in ‘Learning Disability’ on site and one distance-learning course. There are overlaps of modules between these courses and MSc in Epilepsy and Neuropsychiatry. We are currently exploring the option of obtaining PhD as an extension of the current MSc course.

The Jerome Lejeune Foundation was created to study and assist people with : Down syndrome, genetic disorders such as Fragile X or X related syndromes, Williams-Beuren, Prader-Willi and other rare syndromes. The Jerome Lejeune Foundation devotes itself to serving mankind and life, to helping persons with problems related to intellectual deficiency, and to the overall care for persons suffering from health disorders and disease of a genetic nature.
Research
The Foundation is the largest financial provider of research into Down syndrome. In 2003 it financed more than 50 research projects worldwide, totaling 1.4 million euros.
Treatment
Considered the leading research and treatment clinic in France, the medical team at the Institute has a consultation of more than 3000 patients and families for treatment, prevention of added handicaps, diagnosis of rare diseases, and dissemination of information.
Defence of human life
The Foundation's mission is to defend all human lives.
www.planete21.net : first educational site for the mentally handicapped people
Fondation Jérôme Lejeune - 31 rue Galande 75005 Paris
Tél : 01 46 33 31 82 - www.fondationlejeune.org